An application that provides personalized and adaptive health information to support breast cancer patients through their journeys.
Support breast cancer journeys
Investigate how adaptive health information affects patient reported outcomes and engagement with their healthcare.
Expand research to larger urban clinic to compare user needs, interactions, and values with those of a smaller, rural clinic.
Project Roles |
Graduate Research Assistantship
Research Assistant (me): Conducting literature reviews on journey phenotyping and survivorship; coordinating outreach and expansion efforts to other local hospitals and oncologists; writing grant proposals; interviewing participants; collecting data and maintaining database; analyzing data using qualitative and quantitative methods
Project Outcome | As of February 2020
After a 2-year deployment of the tablets in a rural clinic, we're wrapping up our study with comparisons of adaptive and non-adaptive versions of the app and patient interviews to understand how they used the tablets. We're gearing up to expand the project to a larger, urban hospital here in Atlanta with the hopes of addressing clinician communication and survivorship
When a patient has cancer, it can be challenging and overwhelming to search for resources that are relevant to their specific set of circumstances. MyPath was developed to support to breast cancer patients with personalized information that dynamically adapts to their needs through treatment, diagnosis, and survivorship. Using data from the patient's medical record and in-app surveys, the application provides resources that address a holistic picture of their needs.
Over the past several years Georgia Tech's Everyday Computing Lab has partnered with a small cancer clinic in rural Georgia to deploy digital tablets to patients and evaluate how personalized health information was used to manage their disease.
I recently joined the research team to expand the project and answer new research questions:
Journey Phenotyping: How can patient's clinical, behavioral, and social circumstances be characterized to make predictions about their journey and respond to deviations from it?
Mental Health: How can we measure, monitor, and respond to declines in patients' emotional and behavioral health?
Urban vs. Rural Needs: How do the needs of patients in a small rural clinic differ from those in a large urban hospital, and what adjustments can be made to meet them?
Background | Supporting dynamic cancer journeys
I'm wrapping up analysis on some patient interviews and usage logs. Check back soon for updates!